Be very careful to consult your doctor. As a CPKU female it is very importnat to keep you levels under control well before “getting pregnant”. As the father of four young children of which one (my 3 year old) has CPKU, I followed up on this since my wife and I were going to have another baby and we wanted to know what the fourth child would face if born a girl with CPKU. My wife and I are both carriers and thus we had a 25% chance of having another baby with CPKU – fortunately we had our fourth child (now 7 months old) and HE did not have PKU – unfortunately HE was not a girl – but we love him anyway TC – Father of “West” w/ CPKU
i recently attened a MPKU night at my clinic.. (maternal PKU) i was told that u should keep ur levels below 6 months prior to trying to concieve then throughout the pregnancy. i was also told once u become pregnat that u may need to have blood tests as much as 3 times a week. and u will have regular altrosounds and other testing.. they will keep a close eye on u and will beable to detect any troubles early on! hope that was of any help!!
Hi Amanda, ni know its alittle late,but i had 2 keep mine down for at least 2 months.(Before conception) nHowever i am sure its different for everyone. I am borderline PKU,and i think that made a big difference. I do have a healthy 10 yr.old w/no health problems. Good Luck. I know u can do it. Best Wishes, nTracie-PKU
Hi Lois, nMy name is Tracie,and i too have PKU. I was born in the UK.Manchester England,but my parents moved to the states when they found out i was PKU. Welcome to the site.If you have any questions feel free to ask.Plus BreaMarie is a young lady on this site who is very knowledgable,and could probably answer alot better than i. Once agin WELCOME! Talk to you soon, nTracie-PKU