Viewing 8 posts - 1 through 8 (of 8 total)
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  • #5978
    Avatar of amanda
    amanda2910
    Member

    hi im new to this site and my name is amanda and im wondering if anyone could give me advice about how long i have to keep my level down before we can try for a baby. amanda

    #6005
    Avatar of Polly
    pollysmith
    Member

    Hi im polly im planning to have a baby and im doing that for three months to see if i can hold it for that long. How long have you been planning for then? id lv to talk more. lv to here from you.

    #6010
    Avatar of Tim
    timcogdill
    Member

    Be very careful to consult your doctor. As a CPKU female it is very importnat to keep you levels under control well before “getting pregnant”.
    As the father of four young children of which one (my 3 year old) has CPKU, I followed up on this since my wife and I were going to have another baby and we wanted to know what the fourth child would face if born a girl with CPKU.
    My wife and I are both carriers and thus we had a 25% chance of having another baby with CPKU – fortunately we had our fourth child (now 7 months old) and HE did not have PKU – unfortunately HE was not a girl – but we love him anyway
    TC – Father of “West” w/ CPKU

    #6191
    Avatar of amanda
    amanda2910
    Member

    hi polly i have been trying to get my blood down since last may i went back on my diet. how long have u been on it for? love to hear from u soon

    #6503
    Avatar of
    Anonymous

    i recently attened a MPKU night at my clinic.. (maternal PKU) i was told that u should keep ur levels below 6 months prior to trying to concieve then throughout the pregnancy. i was also told once u become pregnat that u may need to have blood tests as much as 3 times a week. and u will have regular altrosounds and other testing.. they will keep a close eye on u and will beable to detect any troubles early on!
    hope that was of any help!!

    #7679
    Avatar of Tracie
    Tracie_PKU
    Member

    Hi Amanda, ni know its alittle late,but i had 2 keep mine down for at least 2 months.(Before conception) nHowever i am sure its different for everyone.
    I am borderline PKU,and i think that made a big difference.
    I do have a healthy 10 yr.old w/no health problems.
    Good Luck.
    I know u can do it.
    Best Wishes, nTracie-PKU

    #7697
    Avatar of Lois
    lois_uk
    Member

    Hi i have just joined the website today, i am from england and have no clue how this works. o have had PKU since i was born and would like to chat to other people to see how they manage their diets.

    #7700
    Avatar of Tracie
    Tracie_PKU
    Member

    Hi Lois, nMy name is Tracie,and i too have PKU.
    I was born in the UK.Manchester England,but my parents moved to the states when they found out i was PKU.
    Welcome to the site.If you have any questions feel free to ask.Plus BreaMarie is a young lady on this site who is very knowledgable,and could probably answer alot better than i.
    Once agin WELCOME!
    Talk to you soon, nTracie-PKU

Viewing 8 posts - 1 through 8 (of 8 total)
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