PKU.com Community Discussion Forum That’s PKU life! Just trying something

Viewing 7 posts - 1 through 7 (of 7 total)
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  • #5028
    Avatar of Breanna
    BreaMarie91
    Member

    I have tried to create a group for people with PKU or for parents of children with PKU. I don’t know how well this will go but everything is always worth a try right? Anyway, there aren’t really many members as of right now but I’m hoping to change that so if anyone wants to join feel free to. The website is groups.msn.com/pkulife nBreanna

    #5039
    Avatar of Emily
    Emlou93
    Member

    Hey my name is Emily,i am 13, and I think that that would be a great idea. I would definitly go to a gruop thing like that. I understand why it would be so hard to get members but if it was an online thing i would do it and i am sure tons of others would too.

    #5041
    Avatar of Breanna
    BreaMarie91
    Member

    yeah it’s online, it’s at this website:
    groups.msn.com/pkulife
    it’s just going slow because I don’t really know how to get others to hear about it since this is the first thing like this I did.

    #5064
    Avatar of Emily
    Emlou93
    Member

    umm i will try to go… do you have to like join/register or something? and what do you do on it??

    #5065
    Avatar of Breanna
    BreaMarie91
    Member

    Yeah you have to go on and then register and then join the group and then it’s kind of like on here, you can chat with others at message boards and stuff.

    #5086
    Avatar of Emily
    Emlou93
    Member

    So is it kind of like this website??

    #5087
    Avatar of Breanna
    BreaMarie91
    Member

    Yeah basically

Viewing 7 posts - 1 through 7 (of 7 total)
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