I have tried to create a group for people with PKU or for parents of children with PKU. I don’t know how well this will go but everything is always worth a try right? Anyway, there aren’t really many members as of right now but I’m hoping to change that so if anyone wants to join feel free to. The website is groups.msn.com/pkulife nBreanna
Hey my name is Emily,i am 13, and I think that that would be a great idea. I would definitly go to a gruop thing like that. I understand why it would be so hard to get members but if it was an online thing i would do it and i am sure tons of others would too.