PKU.com Community Discussion Forum Generation PKU Legislation Mandating Insurance Coverage!

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  • #9404

    The Medical Foods Equity Act was re-introduced in the Senate by John Kerry last week!  It is Senate Bill 311.  Last year the bill never moved forward because it did not have enough co-sponsors.  Up to 50 co-sponsors are needed to move the bill to the next step in the legislative process.  If this bill becomes law, it will mandate that health insurance must cover medical formula and medical foods for the treatment of PKU and other allied disorders.  The help of the PKU community is needed!  Please call your U.S. senators and ask them to co-sponsor the bill.   You can go to the NPKUA website and find a guide to use on your call!

    #9593

     Greetings! It's great to see awareness on the Medical Foods Equity Act. I'm a public policy grad student who's on a consulting team working with NPKUA in analyzing this legislation :)

    Anyhow, I just wanted to say hi!

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