Community Discussion Forum That’s PKU life! Losing weight with PKU

Viewing 8 posts - 1 through 8 (of 8 total)
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  • #9640
    Avatar of Kathrin

    HI there,

    I'm currently trying to lose weight and stick to diet at the same time :) Does anyone relate? Anyone with the same plans? Any advise? 

    Katie xxx

    Avatar of Julie

     I would suggest checking with your dietitian.  There may be another formula you can use with less calories.  I know that was mentioned to me at one time.

    Avatar of stacey

    well im on max xphe orange and have lost wieght with it and Ive cut back on my calories and I go for two 20min walks a day and I was almost 200 pounds and now down to 150 so this is what works for me . I dont drink pop or eat anything high in geases I stick more to fruit and veg and natural sugar and I drink tea rather than drinks with lots of sugar. hope this helps

    Avatar of Heidi

     That actually helps me a bit so thank you. I want to lose some weight but with the whole pku thing I just wasn't sure how to do it and stay on the diet. So much of the 'diet foods' are high in protein but i am really trying to keep my phe levels as low as possible.

    I think I'm going to try just the natural foods now rather than looking for specialised weight loss foods. The only issue i think i am going to have is getting excercise in at this time of year. its constantly raining. but i guess where there is a will there is a way…

    Avatar of Georgina

     Hey Heidi! I m on the same page with you these days! I am about to visit a simple dietitian though that will form me a diet with the types of food I can eat so there will be no problem.  

    Avatar of Jenny

     The medical drink is supposed to help with weight loss, as it has ur protien w/o the phenylalinine… 


     I want to lose weight but its really difficult with this particular diet

    Avatar of Mariana

    That´s the question! I was always sad because of my weight. My classmates were always rude to me because with this weight I really wasn´t star.When I saw that most of PKU have the same problem I stopped to worry. When someone don´t like me it´s not my problem, he don´t need to look:) Now I discover the magic of the tourism and I bought gym ball and small secret is also apple winegar (when I remember) :)  – and guess what? I lose 7 kg!:))

Viewing 8 posts - 1 through 8 (of 8 total)
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