Hi, nTo answer your question yes, low levels can be just as dangerous as high ones. Everybody needs some Phenylalanine and protein, so if you don’t get enough your body starts to break down protein in muscles looking for Phe. If her levels are low your son/daughter should work with your granddaughter’s special doctor/dietitian to help higher them. Usually by giving her some regular formula aswell as her special formula (which I’m assuming she is on?). nBreanna n16 w/CPKU
Hi,I too am a new grandmother of pku she is 7 months old.I just found this site,and hope to get some feed back and questions answered.I do belive that the levels can be too low, if I understand correctly.understanding all this has been very confusing for me.
Hi, Normal levels are between 2 and 6. Your body does need some phenylanline for growing and developing. If her levels swing too low her diet can be adjusted to add more protein. (boy I can not spell ). Hope that is helpful. nSarah