PKU.com Community Discussion Forum New to PKU.com LOW LEVELS AT 3 WEEKS

Viewing 5 posts - 1 through 5 (of 5 total)
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  • #5887
    Avatar of MARCELLA
    KIROCO
    Member

    Hi, this is all new and I am learning as much as I can about pku for my granddaughter who is 3 weeks on old Sat. Her level from sat was very very low and keeps coming down. Is this also a danger?

    #5892
    Avatar of Breanna
    BreaMarie91
    Member

    Hi, nTo answer your question yes, low levels can be just as dangerous as high ones. Everybody needs some Phenylalanine and protein, so if you don’t get enough your body starts to break down protein in muscles looking for Phe. If her levels are low your son/daughter should work with your granddaughter’s special doctor/dietitian to help higher them. Usually by giving her some regular formula aswell as her special formula (which I’m assuming she is on?). nBreanna n16 w/CPKU

    #5910
    Avatar of Kim
    kbergeron
    Member

    Hi,I too am a new grandmother of pku she is 7 months old.I just found this site,and hope to get some feed back and questions answered.I do belive that the levels can be too low, if I understand correctly.understanding all this has been very confusing for me.

    #5921
    Avatar of Sarah
    HappyMom
    Member

    Hi,
    Normal levels are between 2 and 6. Your body does need some phenylanline for growing and developing. If her levels swing too low her diet can be adjusted to add more protein. (boy I can not spell ). Hope that is helpful. nSarah

    #5975
    Avatar of MARCELLA
    KIROCO
    Member

    Thanks for the information.

Viewing 5 posts - 1 through 5 (of 5 total)
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