Community Discussion Forum New to MIlitary PKU Families

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  • #7859
    Avatar of Rachel

    Hello all! I have a son who is 8 months old with PKU. We are a USMC family stationed in NC. I was wondering if there were any other PKU military families on this board?
    God Bless


    Hi I know you posted awhile ago but We are military….I have 4 kids, 3 of which have pku…2 varient….and 1 classical…My husband is in the air force…..would love to be able to talk with someone who is dealing with pku and the military….

    Avatar of Rachel

    Hey! Well it is good to know that there is someone else out there! I can’t imagine how you deal with just 4 kids and being military much less 3 who have PKU. Where are yall stationed at?

    Avatar of CHRiSTiNA

    Hey there, Im Christina, 24 with classic PKU. I was in the Army, but they found out I had PKU and I got discharged medically. Now Im happily married to an Army soldier, and we are trying to start a family. The military has been very good to me with my PKU, they pay for my Kuvan, and various Dr appts and labs. We are stationed at Fort Carson, CO.  Im brand new here to so feel free to add me and we will chat it up =)



    Avatar of Janice

    We are no longer in the military, but when our oldest Cyra was born we where, she is 6 now and has cpku, my husband got out when she was 3.  The military was great for us once we got some of the kinks worked out, we where air force and she was the 1st PKU patient any of the doctors at our base (Dyess in Abilene Texas) or at any nearby bases had seen.  We fought the system a little at first, but it turned out well, I would love to chat, we lived on base housing and at Dyess the housing was on base, once the base locked down and we werent on it, I had a friend of mine throw formula over the brick wall!!!  Let me tell you that was nerve wracking just think a base is locked down and you get caught tossing a can of powder….Phenex 1…..over the brick wall…..luckily nobody caught us but I learnt really quick to keep extra at a friends house!!

Viewing 5 posts - 1 through 5 (of 5 total)
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