I am completely new to PKU and this site and would first of all like to say hello
I don't have PKU, but recently my cousin gave birth to a little baby daughter who happened to have it. Unfortunately, my relatives live in a country where resources are scarce and they are getting on with a very low budget. Government funding is out of the question. They don't have Internet access, which is why I am taking this step on behalf of them.
The family is quite desperate and they need sponsors to afford the girl's special diet. My question to everyone here is, are there any well-known funds for less fortunate people with PKU? I am by no means asking for money, just some pointers on where to look or what to do in order to help them. I'm not quite sure how much money the special diet costs. Would anyone know what the expenses are? All I know is they can't afford it.
Other than that, I find this site to be a great spot! Thanks for the info and help thus far.