PKU.com Community Discussion Forum Parent support non classic pku and drugs

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  • #16302
    Avatar of medina
    medina2009
    Participant

    Hi everyone,
    One of my friends has a non classic pku baby. he is a six month old baby. Genetic testing show the ptps pku for him. the doctors diagnosed using some drugs for him. Now he uses four types of pills such as kuvan, hydro, …
    After using drugs, The baby is very nervous and interrupted. Scratched his face. he cant be calm. The doctors said he should use his drugs and he doesnt have any other way. If anyone knows anything about this problem, please help. the situation of this baby is so bad, please help.

    #16303
    Avatar of medina
    medina2009
    Participant

    I was wondering that all non classic pku people should use drugs? Is it possible for them to have a healthy life without using drugs such as kuvan?

Viewing 2 posts - 1 through 2 (of 2 total)
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