Viewing 14 posts - 1 through 14 (of 14 total)
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  • #5286
    Avatar of Robyn
    rgirard
    Member

    I’ve been looking for a PDA-version of the PKU food list…anyone found one that works?

    #5289
    Avatar of Breanna
    BreaMarie91
    Member

    If you go to http://www.myspecialdiet.com and then go into the diet management section they have something for a palm. It should work. You just have to download it onto your computer and then you should beable to download it on her PDA from there.

    #5332

    awesome!

    #5334
    Avatar of Breanna
    BreaMarie91
    Member

    Although I should warn you, it is only generic foods and only gives a rough estimate of phes in food. My dietian told me it should really only be used if your away and need a rough estimate if something will be okay. She said when I get home I should still check in the phe book because the PDA program isn’t 100% accurate. nBreanna

    #5351
    Avatar of michael
    chargers1
    Member

    whats the phe book?

    #5355
    Avatar of Breanna
    BreaMarie91
    Member

    Just a book virginia schuett created that tells how much phe is in foods (supposively it’s supposed to be the most accurate on how much phe (or exchange which ever you count by) is in foods).
    The PDA only gives an estimate of how much phe is in 100g of that food

    #5507
    Avatar of Amy
    Amy1781
    Member

    Where can you get this book?

    #5516
    Avatar of Breanna
    BreaMarie91
    Member

    The only place I know that you can get a hold of this book is at http://www.myspecialdiet.com. There is a store spot and you can order it there…I know there are other spots but I’m not sure where else you can get it. nBreanna

    #5772
    Avatar of Sherry
    buffy_muffy
    Member

    Hello! I’m new to the website and learning about PKU. My son infant is 4 months old and has PKU. I’m trying to learn everything and get resources. I believe I found on the book on the website you were talking about. I definitely want to get a copy of it. Do you know if the name is “Low Protein Food List for PKU (2002)” by Virginia Schuett? Thanks!

    #5774
    Avatar of Breanna
    BreaMarie91
    Member

    Hey Buffy_Muffy, nYes that is the book. Virginia Schuett did make another one, but the one you just mentioned is the newer version so that would be the one I suggest you should get. You should beable to order it from http://www.myspecialdiet.com but if not you can always talk to your son’s doctor or dietitian and see if they know of anywhere else you can get a hold of the book from. nBreanna 16 (in 19 days) w/CPKU

    #6196
    Avatar of Momofadyangel
    Momofadyangel
    Participant

    Our dietian helped us get the PDA download for our daughter, Plus two books to use one is PHE For Three. and the other one is on order. If she did not think the PDA would work. She would not help us download it.

    #6199
    Avatar of Breanna
    BreaMarie91
    Member

    Glad to hear the PDA program works for you! I did use a program for a PDA for awhile, but after awhile I lost interest in using it. That and I lost my PDA anyway . nBreanna 16 CPKU

    #6315
    Avatar of Momofadyangel
    Momofadyangel
    Participant

    You can get some books off amazon.com. Just type in PKU in the search box. That where I’m getting all of my info. Also if you contact a State University Center of Development Disaibilties, they have a libary that will loan libary material to look at. I go on-line to see what is available then call for them to sned it to me.. Then if I like it, I search the web for it.

    #6317
    Avatar of Breanna
    BreaMarie91
    Member

    Yep I know! I think that’s actually where my mom got our two phe books (the old and new one that Virginia Schuett created). nBreanna

Viewing 14 posts - 1 through 14 (of 14 total)
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