Community Discussion Forum New to Phe from 1600 to 160 (HELP)

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    Avatar of nai

    My daughter is almost 2 months old, we live in DC, the test of her phe levels came back with 1600, she was put on a diet (PKU formula only) for 3 days and her Phe levels dropped to 160, now she is taking 70% breast milk and 30% special formula.
    does this mean she has PKU? are all of the parents believed this from the first test they did ?
    did they do the genetic test?
    my and wife, we don’t have any history of PKU.
    PLEASE HELP! my wife is going insane and we all are very sad

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