My daughter is almost 2 months old, we live in DC, the test of her phe levels came back with 1600, she was put on a diet (PKU formula only) for 3 days and her Phe levels dropped to 160, now she is taking 70% breast milk and 30% special formula.
does this mean she has PKU? are all of the parents believed this from the first test they did ?
did they do the genetic test?
my and wife, we don’t have any history of PKU.
PLEASE HELP! my wife is going insane and we all are very sad