I have a 2 1/2 year old son whose phe levels like to elevate between 2-10 while following the diet. We have changed the amount of phe he intakes, phenex, and actually increased calorie count. Does anyone else have issues with this?
Rocky21, I have CPKU and I do remember when I was younger, maybe between like 2 and 6 or around there my levels and all that was changed alot. If your son is having exactly how many phes and formula he’s supposed to have then chances are maybe he is probably being allowed to many phes. nBreanna