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  • #4593
    Avatar of Rochelle

    I have a 2 1/2 year old son whose phe levels like to elevate between 2-10 while following the diet. We have changed the amount of phe he intakes, phenex, and actually increased calorie count. Does anyone else have issues with this?


    no but i hope you get everything all figured out. good luck!

    Avatar of Breanna

    I have CPKU and I do remember when I was younger, maybe between like 2 and 6 or around there my levels and all that was changed alot. If your son is having exactly how many phes and formula he’s supposed to have then chances are maybe he is probably being allowed to many phes. nBreanna


    my sons stay between 2 and 6 like they should. i know it will get harder tho. thanks heather

Viewing 4 posts - 1 through 4 (of 4 total)
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