PKU.com Community Discussion Forum That’s PKU life! PHENYLADE IS THE STUFF

Viewing 11 posts - 1 through 11 (of 11 total)
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  • #5924
    Avatar of Chris
    niceguy
    Member

    Hey what do you think about phenylade

    #5929
    Avatar of Breanna
    BreaMarie91
    Member

    I used to drink Phenylade, I drank basically anything and everything they ever made. But the last one I drank was the Chocolate. I really liked the taste but I had to stop drinking it because for some reason it gave me massive stomachaches so I just refused to drink it.
    Now I drink Vitaflo PKU express coolers and XPhe Maxamum juice boxes. nBreanna

    #5933
    Avatar of Chris
    niceguy
    Member

    Hey breanna where did you get the vitaflo collers. And phenylade makes my stomach hurt to but olny when i drank it fast. DID YOU DRINK IT FAST
    nnnnnnnPSid the vitaflo?

    #5934
    Avatar of Breanna
    BreaMarie91
    Member

    No I didn’t drink it fast. My doctor guessed it was because of how many calories are in Phenylade. I’m a pretty small person so he was assuming it was to many calories for me to handle. He wanted to switch me but my dietitian said no. nAnyway, I got the Vitaflo coolers because back in September when I went in for an appointment we did a blood test right before we went and my tyrosine level was to low to even read! Well it just happened I got a new dietitian and doctor and my dietitian (she is 1000times nicer then my old dietitian) gave me the coolers to try. nThen I was at a conference in February and that’s where I tried the juice boxes and I liked those so when I went in for another appointment in March I asked if I could start drinking those. nBreanna

    #5935
    Avatar of Chris
    niceguy
    Member

    Hey how old are you Breanna

    #5938
    Avatar of Breanna
    BreaMarie91
    Member

    I’m 16, but according to my new dietitian I’m at like the bottom of the chart of where girls my age and height should be weight wise.

    #5942
    Avatar of Chris
    niceguy
    Member

    I’M 14 AND I’M SMALL FOR MY AGE

    #5945
    Avatar of Breanna
    BreaMarie91
    Member

    My sister, Erica 8, has PKU too and she’s small too. Hmm, maybe it’s a PKU thing.

    #5948
    Avatar of Chris
    niceguy
    Member

    I think it is a pku thing

    #5952
    Avatar of Breanna
    BreaMarie91
    Member

    Then again I’ve met some other people with PKU who aren’t small for their ages.
    All I know is the whole blue eyes blue hair is mostly the case…but not for me. I’ve got light skin but my hair is dirty blonde just like my siblings and I’ve got brown eyes!

    #5954
    Avatar of Chris
    niceguy
    Member

    Hey i have brown eyes 2

Viewing 11 posts - 1 through 11 (of 11 total)
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