I have a pku that was picked up late, it messed me body up as I am starting find out, I am having trouble with severe bloating,half the time I look a bloated whale. People pick this as been too fat and overweight. It can be so tight that I feel that I gonna burst!!!! This is common if your body cannot breakdown most the food in the diet. I wake up normally thin and end the day looking like obese person even thou I am not.
I wonder when they come up with medication that will relive such is as us PKU suffers may get as a complications from been picked up too late causes many medical hiccups later life.