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  • #8721
    Avatar of Amanda
    mommyof2
    Member

    Even though I am only 10 months into pku with my daughter, I want to start an awareness or do something for pku in Connecticut (where we live). Has anyone tried to do anything like this or can give me some advice on the best way how to start? This is something I'd like to do for my daughter as well as other in CT with pku, and I'm hopinh if I work hard enough at it in the next few years I'd have made a difference. Any advice, tips, anything from anyone would be wonderful. Thank you.

    -Amanda

    #8727
    Avatar of Kristi
    pkukristi
    Member

     I know that several years back, May was declared PKU Awareness Month.  Try checking out macpad.org and maybe you can join forces with them and add to some of their events!

Viewing 2 posts - 1 through 2 (of 2 total)
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