My son is now 8 and he is wanting to meet other kids his age. I have heard of PKU camps. I haven’t found any info for 2009 though. Have any of you been to one of these camps? Do you know anything about one for this year?
Hi there, nMy name is Tracie,and i went to a PKU camp a while ago.It was at UC DAVIS in SAC. CA. I heard of a camp going on in Emory University in Atlanta Georgia. The camps are alot of fun,and teaches campers how to deal with PKU.Make different recipes. nAlot of fun and encouraging talks. I hope i helped you out some? See Ya, nTracie-PKU
Hi Shorty, I see you are under Dr. Kochs care. I am too as well as Liz,and Kathy. I swear if i could clone anyone it would be that entire team. May i ask what kind of struggles you are having? I just started back on diet its been about almost 6 months now. Have you tried Kuvan yet? That is what Dr. Koch has me on,and its actually working.(Thank God).
The diets not easy.If i can help you in any way just let me know.
I will add you to my friends list,and we can talk if you want?
Missmudd, Speak with your son’s doctor or dietitian. They are usually given information on PKU camps or they know where you can get information. You might also want to check with them because a lot of states have PKU organizations that hold events such as holiday parties or summer picnics. I know they hold Camp Phever and Camp Phearless each summer in (I think) Texas. One is for children and their PKU siblings and the other is for adults. Again talk to your doctor and they might be able to hook you up with the person incharge of these camps. I have gone to PKU for the past two years, but it was a Maternal PKU camp so it was for girls 14 and up. It is very fun and I still talk to pretty much all of the other girls who attended camp.