I’m always told my boys’ levels are around 240 and that they need no special diets. Are these levels recognised all over the world and indeed, does PKU exist all over the world? Has anyone with low levels found health professionals to be wrong and that their levels have risen? I have so much sympathy for you guys on special diets.
As far as I know there are two units for measuring phe levels. One is mg/dl and the other is umol/l. If your sons levels are 240umol/l then in mg/dl their levels would be 4mg/dl. Phe levels are suppose to be between 2-6mg/dl (or 120-360umol/l), so your sons levels are great!! People are born with PKU throughout the world, but because PKU occurs more in people who are irish or caucasion some places have a higher population of Phenylketonurics.