Community Discussion Forum Parent support PKU product in London

Viewing 3 posts - 1 through 3 (of 3 total)
  • Author
  • #9617
    Avatar of ahu

    Dear All,

    I live in Turkey and now I am in London for a short time. It is hard in my country to find lp products.Where can I find these products in London? For e.g loprofin flakes, nestle nestargel or egg replacer.

    Thanks for your support.

    Avatar of Apostolia

     I don,t know about London, but where do you live in turkey? In Greece you can order thess products from a pharmacy without prescription, so maybe if some friend  came here, you could buy them from here. I can give you more details if you like.

    Avatar of Kathrin

    Merhaba Ahu,

    there is a company called Firstplay in the UK – I'm sure you can order the products to your hotels address maybe – just talk to the people of the company and explain your situation – they are very friendly and helpful and the products are DELICIOUS.

    Tell me, how you like this idea and whether it worked if you intend to try it out :) 

    Hosca kal! 


    Katie xxx

Viewing 3 posts - 1 through 3 (of 3 total)
Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional