Community Discussion Forum New to preemie with PKU

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    Avatar of Fletcher

    I delivered my baby girl at 27 weeks gestation 3 weeks ago and she was diagnosed with PKU 5 days following birth. Can anyone recommend a PKU practitioner who has had experience with premature infants? nThank you, nLezlie

    Avatar of Breanna

    I was a premie baby (but I only think by maybe 4 or 5 weeks) I’m not sure if my mom got a specialized doctor for me, I know I of course had a specialized PKU doctor but from what I know me being born early didn’t change much. Also I guess it would all depend where you live. nBreanna

    Avatar of Sarah

    Do you mind telling us where you live? Didn’t your practioner direct you to a specialist or PKU clinic? nCongratulations on the new baby! What did you name him/her? My little man is almost 10 months old now, Easton.

    Avatar of Caleb

    Having a preemie and PKU can make it a little harder I had a 2lbs preemie but I had great doctors though they had never before had a baby that small they managed it well and now my almost four year old is thriving. It is a hard balance because preemies need did nutrients then full term. I breast feed for almost a year and would mix the breast milk with the formula yes at times it was difficult but it was the best thing for Caleb.

Viewing 4 posts - 1 through 4 (of 4 total)
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