Community Discussion Forum Generation PKU Project Kuvan

Viewing 6 posts - 1 through 6 (of 6 total)
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  • #7317
    Avatar of Philip

    Hello, nMy name is Philip Welch, I am 24 years old, live in Los Angeles, CA, and I have PKU. I would like to inform everyone of a project I have undertaken which hopefully will serve as a valuable resource to those seeking more information about BioMarin

    Avatar of Philip

    A new video titled “Lauren’s PKU Story”
    has been added to
    This video tells the story of Lauren, a successful student and athlete who recently began taking Kuvan, and decided to do a school science fair project about her experiences.
    Visit the website to see at, and other similar videos!


    Thanks m8 I’ll be sure to take a look at that vid.

    Avatar of Tracie

    Hi Philip,
    my name is Tracie by chance is ur Dr. nDr. Richard Koch? nAnd i have a question if you do not mind? nHow many Kuvan do you have to take in one day?
    Take care, nTracie nContact info:
    Anyone feel free to e-mail me just to talk or vent or share stories of our children and the ones on the way…..

    Avatar of Philip

    Hello Everyone.

    I have posted a new video titled “Treating The Next Generation” posted on

    This video features a portion of a talk given by Heather Bausell at
    the International Teen and Adult PKU Conference in Chicago. The
    subject matter is future treatment options for PKU.

    Please Visit

    to view this and other PKU related video’s.

    Avatar of Holly

    My husband and I just learned about your project durning the Fall PKU Summit. Great idea and I have watched a couple of videos already.

Viewing 6 posts - 1 through 6 (of 6 total)
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