PKU.com Community Discussion Forum New to PKU.com Search for parents of PKU child in russia

Viewing 4 posts - 1 through 4 (of 4 total)
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  • #7184
    Avatar of Xin
    xmmixam
    Member

    Hi,
    My wife and I have just had a baby, and unfortunately she is of PKU. We certainly feel sad for her, but more importantly, we will do whatever it takes to bring her up as normal as possible. We are currenly located in Moscow, and hope to get acquainted with other parents who have PKU child. If anybody there, please contact us.
    J&M

    #7186
    Avatar of Breanna
    BreaMarie91
    Member

    First of all, congrats on your baby girl! I’m sure you and your wife will do just fine with her diet.
    I don’t live in Russia (I’m in the US), but I just wanted to let you know if you ever need anything I’m willing to help! nBreanna 16 Classical PKU

    #7600
    Avatar of Tracie
    Tracie_PKU
    Member

    Hi there,
    I am from the US, and have PKU. nBelieve me its not that big of a deal. nTry not to make it the main focus of her life. nMay i ask what type of PKU?
    I am Borderline PKU.
    I am 39 yrs old, and doing fine.
    Get her started on her formula, and when she is ready for foods start with veggies. nThose will become her best friend.
    Honestly as long as she is on a low pro diet she will have a normal life. nJust veggie style.LOL
    As for myself i am allowed real cheese,and tofu,but besides that i eat all veggies,and measure everything. nBut thats okay.That is what you guys are for. nYes she is special, but in more than just a PKU way.
    I have a daughter who is 10 yrs old and no PKU,but she was also my miracle baby.
    I cannot have anymore.The birth did alot to my body,but i am thankful everyday i have with her.
    If you need references Look toward LOMA LINDA FOODS.IN US,but they can help you with all your decisions.
    Believe me she is as normal as can be just with a special diet.
    Take Care, nTracie-PKU

    #7601
    Avatar of Tracie
    Tracie_PKU
    Member

    Hi its Tracie again, nRemember no one can tell on the outside. nOnly when she goes to eat. nJust make it special for her.
    You can do it.I HAVE FAITH!!!!!!!
    Tracie-PKU

Viewing 4 posts - 1 through 4 (of 4 total)
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