Viewing 7 posts - 1 through 7 (of 7 total)
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  • #5005
    Avatar of Breanna
    BreaMarie91
    Member

    Well I’m super happy now, we just got our last levels back (well actually it was maybe a week ago) and mine was 6.9mg/dl!!! My last one was 8.6mg/dl so that was a huge improvement, plus my dietian said my tyrosine level went up alot which is good because it was really low before. So I just thought I’d share the exciting news.

    #5009
    Avatar of Sarah
    HappyMom
    Member

    Way to go!!

    #5012
    Avatar of Breanna
    BreaMarie91
    Member

    Thanks, my sisters on the other hand was higher so that was a bummer but we’re working on that with her.

    #5018
    Avatar of debbie
    debbieco
    Member

    Congratulations on your great phe results!

    #5023
    Avatar of Breanna
    BreaMarie91
    Member

    thanks, now the tricky part will be to keep it down.

    #5046
    Avatar of Emily
    Emlou93
    Member

    hey congrates on your good relsults. I was also wondering if anyone lived in Illinois? And do you know anyone in your school that has pku also other than yourself Bre?

    #5047
    Avatar of Breanna
    BreaMarie91
    Member

    No we live in Wisconsin, near Milwaukee (not sure if you know where milwaukee is). And I don’t know anyone else with PKU at school but my one sister has PKU and I know someone who has a 4 year old cousin with PKU. We used to be friends and I meet with her cousin once but we kind of lost touch because we don’t have classes together and stuff.

Viewing 7 posts - 1 through 7 (of 7 total)
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