Well I’m super happy now, we just got our last levels back (well actually it was maybe a week ago) and mine was 6.9mg/dl!!! My last one was 8.6mg/dl so that was a huge improvement, plus my dietian said my tyrosine level went up alot which is good because it was really low before. So I just thought I’d share the exciting news.
No we live in Wisconsin, near Milwaukee (not sure if you know where milwaukee is). And I don’t know anyone else with PKU at school but my one sister has PKU and I know someone who has a 4 year old cousin with PKU. We used to be friends and I meet with her cousin once but we kind of lost touch because we don’t have classes together and stuff.