Viewing 3 posts - 1 through 3 (of 3 total)
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  • #5964
    Avatar of Momofadyangel
    Momofadyangel
    Participant

    Has anyone apply for SSI? A church member who works for Social Security gave me the appplication to apply. But Addy’s Doctor said it wouldn’t pay for anything. Don’t know what to do.

    #6016
    Avatar of sandra
    speedinsndy
    Member

    SSI is aid given to families depending on the size of the family and the income. Social Security pays money to children who have what they consider a disability, but when it comes to children of PKU it is a little harder to get I think because they don’t really know much about it. I applied for my daughter when she was 2 yrs old and I had to fight hard to get it. But if you do your child will automatically get medicaid which helps pay for the special food. Give it a try. Call your local office and tell them you want to apply. Worst they can do is turn you down. Doesn’t hurt to try. But be prepared you may have to fight for it. Hope this helps

    #6077
    Avatar of Momofadyangel
    Momofadyangel
    Participant

    I talk to my friend that works for SSA and if we don’t qualify for SSI and can open more doors for Addy, by just having the refusal letter.

Viewing 3 posts - 1 through 3 (of 3 total)
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