Community Discussion Forum New to teenage pku son

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  • #5761
    Avatar of nicole

    Hi Guys, im new to this site found it by typing in pku to see what would come up. I have a son 13 with classic pku. Any tips for me that would help me get a better understanding of
    how he feels.

    Avatar of Breanna

    Hi Nicole,
    I guess the best way to understand how your son feels is probably to talk to him. Yeah, I know it’s easier said then done . If you want I would be more then happy to talk to you (and your son if he even wants). Do you guys have a good relationship between your PKU doctor/medical geneticist and your dietitian/nutritionist? I know that is one thing that helped me alot because when I got both a new geneticist and dietitian it was alot easier for me to talk about my PKU at appointments.
    If you ever want to email me you can email me at
    Breanna n15 w/CPKU (16 in June!)

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