PKU.com Community Discussion Forum New to PKU.com teenage pku son

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  • #5761
    Avatar of nicole
    Nickyig
    Member

    Hi Guys, im new to this site found it by typing in pku to see what would come up. I have a son 13 with classic pku. Any tips for me that would help me get a better understanding of
    how he feels.
    Nicole

    #5762
    Avatar of Breanna
    BreaMarie91
    Member

    Hi Nicole,
    I guess the best way to understand how your son feels is probably to talk to him. Yeah, I know it’s easier said then done . If you want I would be more then happy to talk to you (and your son if he even wants). Do you guys have a good relationship between your PKU doctor/medical geneticist and your dietitian/nutritionist? I know that is one thing that helped me alot because when I got both a new geneticist and dietitian it was alot easier for me to talk about my PKU at appointments.
    If you ever want to email me you can email me at complete@ameritech.net
    Breanna n15 w/CPKU (16 in June!)

Viewing 2 posts - 1 through 2 (of 2 total)
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