Hello, I know I am in the wrong place but dont know where else to go. I know PKU is like Tyrosinemia, except different enzyms I think. I've tried looking for a message board for Tyro but can't find one.
I was born with it and had to be on a diet of no protine and formula just like you all. This went on till I was 13 and had a liver transplant. I still technically have Tyro I was told. Anyway, thanks.