PKU.com Community Discussion Forum New to PKU.com What kinds of food??

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  • #6233
    Avatar of Constance
    Squeck
    Member

    [/FONT]Hi, I work in a school cafeteria. We recently have a new student, she has PKU. We have tried to get a list or some information about what kind of a diet she can have. We will take any suggestion anyone can give us! Thank you so much for all the help. I love this web site! It has so much information.

    #6237
    Avatar of Breanna
    BreaMarie91
    Member

    I think that is so wonderful and amazing that you are looking to find out as much information as you can to help this little girl out! Bravo to you!!!
    At my sisters school (Erica is 8 and has PKU too) they provide her with low protein foods. What her school does is they email my mom the school lunch menu a few weeks before that month begins. Then my mom modifies the menu so that it fits my sisters food allowance; switching out regular food with her low protein foods etc. For example if the lunch planned for a day is cheese sandwiches, tomatoe soup etc my mom would change the cheese sandwiches to Eric’s sandwich made with Erica’s special bread and special non dairy cheese and then the tomatoe soup would be made without milk and she does this with the whole menu for the month. Then when the next month is coming up my mom plans the menu again and the school buys and provides all the food.
    Since she is on a low protein diet, this would mean that foods high in protein are not allowed. In most cases this exludes things like: meat, poultry dairy, most grain products, beans, nuts etc from her diet. Her diet would mostly be fruits, veggies, startchy foods in measured amounts and special low protein foods that are made to imitate things like breads and pastas. I’m not sure if your purchasing food for her, but if you are then you could check out http://www.cambrookefoods.com. They have plenty of foods there that are okay for PKU kids.
    BUT I must causion you that you do need to talk this all over with her parents and most likely the school lunch and her teacher. Each child with PKU is allowed a different amount of protein (more specifically an amino acid in protein called Phenylalanine or phe for short). So because of this her diet might be more relaxed and she could be allowed some grain products or it could be very strict where she would really have to measure the amount of foods she’s eatting. In most cases the parents will talk to you and let you know if they want their child just to bring a cold lunch, for you the provide a lunch made up of fruits and veggies, for you to provide low protein foods etc.
    I really hope this helps and I think you are doing a wonderful thing! This will really help this little girl to feel more like her peers! nBreanna 16 with Classical PKU

    #6277
    Avatar of kelly
    kdeemcbell
    Member

    I have a friend whose daughter just started kindergarten. She has classic PKU. She said the most helpful thing is they are able to get a list from the cafeteria a week ahead of time. They go through and highlight the items that she can eat and her daughter brings anything else that she might need to supplement her lunch with in her lunch box. This way she gets some of that normalcy that the other children have of going through the line and still gets what she needs.

    #6341
    Avatar of Meaghan
    mayrogers13
    Member

    The easiest thing for everyone would be for the girl to bring in a list of food that she likes to eat. That way you have foods that she enjoys and its less stress for you guys as well

Viewing 4 posts - 1 through 4 (of 4 total)
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