Effective Date: August 24, 2006

Kids! Read This Carefully Before You Use this Website!

Your privacy is important to BioMarin Pharmaceutical Inc. (“BioMarin”) and we treat your private information seriously.

This notice tells you how BioMarin can collect, use, and share information that children may provide through this site (the “Website”). Please read this whole notice before you use this Website. If you have any questions or read something you do not understand, please ask your parent or guardian to help answer your questions or to contact BioMarin for you.

You must be at least 13 years old in order to use this Website and to post or enter anything here unless your parent says to BioMarin that you can.

If you want to use this site now ask your parent to register you and use it together.

If you are under 13 years of age and want to use this site without your parent, you need to get them to sign the consent form before you can enter any information about yourself (like your name, address, phone number, email address or hobbies) or surf these pages.

If we find out that someone gave us private information about a child under the age of 13 besides their parent, we will erase that from our Website and our database as soon as possible.

Visitors between the ages of 13 and 18 must also get permission from their parent or guardian before using this Website.

Kids under 18 can’t enter into most of the contests or get free stuff unless BioMarin says so.

What we know about you:

Some pages can be seen without getting any private information fromyou, but others pages may ask for information about you before you can use them. In those areas, we may ask you for your name, address, telephone number, and email address and relationship to the BioMarin product or program. We may also collect certain information from your computer about you to learn about who uses our Website. This information includes your computer IP addresses, domain names of our users’ Internet Services Providers, the sequence or duration of visitors to each page, the total number of visitors to our Website, and the number of visitors to each page of our Website. We use this information to make our Website better and do not keep it as part of our information about you personally. So we may count the number of times you visit, but we will only look to see how many people visited a page overall and we can’t go back to look at what exactly you did and when. In other words, this data will be in aggregate form only and it will not contain personal information nor is it linked to any personal information that can identify any individual.

Cookies for your Computer

We also use “non-persistent cookies,” which is a small data file that a server gives to your browser when you access a Website in order to let you access the pages you request and to track the pages visited. Using non-persistent cookies to track page visits helps us analyze our site usage more accurately. In cases in which non-persistent cookies are used, we will not collect your personally identifiable information except with your explicit permission. If a portion of this Website requires a password, you are giving us permission to use a “persistent cookie,” which is a small data file that is generated when, as a registered user of this Website, you enter your assigned user ID and password and access the site. This file is stored on your computer, and enables your browser to access each page that is in the password-protected area.

When we collect personal information, we only collect such information that is reasonably necessary for you to participate in the activity on this Website. We are not allowed to condition your participation in any activity on this Website on your disclosing more information than is reasonably necessary to participate in such activity.

How we use your information:

BioMarin may use your personal information to:

  • contact you to get more information

  • process your information

  • communicate with you

  • make this Website better

  • give you information that you asked for or that we think might be interesting to you

  • perform marketing studies and analyses for internal use

Who else can share your information:

If you register on this Website to post anything, your information may be put on the Website where other people can see it. This happens if you decide to post a message, photo or profile on the Website with your username. Other visitors to the Website will be able to see your post. BioMarin may also share your personal information with people who help with our Website or other services. Other people who may share your personal information also have to agree to keep it safe and secret. BioMarin may share information about the groups of people who use this Website with other people but that information will not list your name or personal information separately. In other words, we may share aggregated, unidentifiable statistical and other information about users with third parties for any purpose, including commercial purposes, but in such cases we will not identify you or any other specific individual. Your parent can choose if they will allow us to collect any of your personal information and they can choose not to allow other people to get your information.

Parents, you have the option to consent to our collection and use of your child’s personal information without consenting to the disclosure of that information to third parties. Also, your parent may review the information we collect from you, ask to have it deleted and/or refuse to permit our further use or maintenance of that information by contacting the Website operator as provided in this Privacy Notice. Except as otherwise set forth stated in this Privacy Notice, BioMarin will not disclose your personal information to third parties without you or your parent’s consent. However, in the event that disclosure of your information by BioMarin is required by law, BioMarin may disclose such information without obtaining consent.

Kids, that means that unless we ask you first or we have to share it to follow the law, BioMarin will not give your personal information to anyone else that we did not talk about here.

How to contact us:

If you have any questions, comments or concerns about how your personal information is handled on this Website, you may contact the operator of this Website at:

BioMarin Pharmaceutical Inc.
105 Digital Drive, Novato, CA 94949



BioMarin can change this notice anytime. We will post changes to this notice on the Website so you should read this notice again if you come back to this site at another time. If you visit this Website after we make changes, we will think that you and your parent agree with the rules for the Website and you agree with this notice. If you or your parent do not agree, you should let us know by sending us an email at

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