Free downloads

• Caretaker's Guide to PKU: Tells about PKU and the low Phe diet. Keep a supply to give teachers, babysitters, neighbors, and grandparents.
• Phe trackers: Use these grids to track your child's Phe, or to leave a list of foods for a babysitter to use.
  • 1-day eat-sheet.
  • 2-day eat-sheet.
  • 3-day eat-sheet.
  • 1-day Infant's eat-sheet.
• Caregiver eat-sheet: An easy way to list what's ok to eat today when you leave your child with another caregiver.

Helpful online resources:

• Patientpower.com: In-depth podcasts and web programs on topics like managing PKU, Phe and the brain, treatments, and more. Many in Spanish.
• PKU on YouTube: Overviews, science projects, personal stories and observations about living with PKU.