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Free downloads
- Caretaker's Guide to PKU: Tells about PKU and the low Phe diet. Keep a supply to give teachers, babysitters, neighbors, and grandparents.
- Phe trackers: Use these grids to track your child's Phe, or to leave a list of foods for a babysitter to use.
- Caregiver eat-sheet: An easy way to list what's ok to eat today when you leave your child with another caregiver.
Helpful online resources:
- Patientpower.com: In-depth podcasts and web programs on topics like managing PKU, Phe and the brain, treatments, and more. Many in Spanish.
- PKU on YouTube: Overviews, science projects, personal stories and observations about living with PKU.
Video Resources
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Dr. Burton talks about organizing and diet |
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Dr. Burton speaks about ADHD and other attention issues in PKU | |||
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Dr. Burton talks about managing your PKU |
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Dr. Burton talks about short-term memory issues | |||
