When a friend or teacher asks about PKU, what do you say?
It might be easy to describe PKU as a diet thing—but the truth is, it’s really a brain thing.
Next time, try explaining the impact that PKU has on a developing brain.
It’s true, living with PKU has a lot of challenges, and it needs to be managed for your entire life. You know this—you’ve been managing PKU your entire life. But you can’t do it alone, and you shouldn’t have to. So why not have an entire team who has your back? You can manage your PKU with resources and support from your care team.
Unmanaged PKU affects the way you think, feel, and act.
High or unstable blood phenylalanine (Phe) levels can damage the brain and make many aspects of everyday life more difficult, including building relationships, planning for an event or trip, and completing tasks at home, work, or school.
See why and how others made their journey back to a PKU clinic after not managing their PKU.
The best way to keep your brain healthy and focused is to own your PKU management. Having an honest conversation with your care team is important for lifelong PKU management.
It might be easy to describe PKU as a diet thing—but the truth is, it’s really a brain thing.
Next time, try explaining the impact that PKU has on a developing brain.
Together, you can encourage each other to develop better PKU care habits and help each other stay on track.
