2 years later.

2 years later.

Avatar of Khyrsten

2 years later.

January 6, 2016 in Living with PKU

Its been 2 years! yes this is Pkugirl88 but on a new one because well I forgot my stuff. Lots have happen since then. I work at a daycare just hit my 1 year mark. For a while I was on my diet almost perfect. Then when I moved into my own place man those food just wanted me in my life. ive been off diet for a year now and man its screwing with me. but first a quick catchup. I am khyrsten, I have classic pku. on and off diet all my life. 4 years ago I lost my daughter to not being 100 percent on my diet before getting preggo. other things went on but that's a long story. Ive been with the love of my life Raymond. 5 years now. last time I blogged we broke up. I was out of control. from depression of loosing out daughter and effects of being off diet. 2015 I moved out and got my own place. nothing fancy but its home. I have two furry babies deede and dexter. they are 16 ive had them since I was 10. Now I have gone off diet. I hate my formula, and I love all food, but my health is at risk. I suffer from sever chronic migraines, PTSD and chronic depression. I have had MRI of my head and it has shown damage to the brain from being off diet. My memory SUCKS and Im moody. Oh yeah and I sleep ALOT. I am getting back on here. Ive had my fun with food. I am bored with a "normal" food. I am tired of hurting and sleeping all day. So 2016 is the year I am attempting to fix my diet and my health. Weight loss being one of it. and to be honest I want to have a baby with in the next year or 2. ill have ups and downs. but failure is not an option in this. as of now I am 170 lbs my goal is 140. every week I will be telling you guys how im doing. join me? also I love helping people with diet stuff. if youre trying to do the same add me! we can do this together!!!

4 Reviews of 2 years later.

  1. Registered: May 26, 2017

    Posts: 0

    No Location

    Hold on, Khyrsten. My brother and i have struggled like :pku & now he also has parkinsons disease.
    I also had PTSD & anxiety attacks & severe depressions, etc.. and lots of physical problems too & no successful diet mgmts despite numerous olympic-sized attempts (forgive the hyperbole).
    I am now in the clinical trial study for pegpal & it is FANtabulous & almost fda approved. I think it may soon be covered ny insurance so it can be prescribed to us all. So-hold on.. and I will pray for you..

    • Registered: Jul 21, 2014

      Posts: 0

      No Location

      The ptsd and depression are awful. I hope you manage it as well not something I like seeing other fight with.

  2. Registered: Aug 29, 2012

    Posts: 0

    Casa grande, Arizona

    Hi Khyrsten,

    My name is Rachel, new to the site and while reading your post I was taken back down memory lane. I am 44 years old and have. Even through so many challenges in my life from PKU. The desire to eat the forbidden foods I know all too well. As a teen I lived a double life, pku daughter at home but normal eating human with friends. I struggled terribly in school, relationships, work and so on. The physical and emotional pain of daily comprehensions of everything that most people take for granted. I want to express to you how important management of pku is. As the last come t to your post, I too am on Pegpal and it is the next best thing to a cure!! I promise you! I have been involved as a research patient on and off my whole life because I just don’t possess the self discipline needed to follow the restricted diet. Only time in my life o have was when pregnant. After all there were other lives at stake. I have 4 girls, one I lost due to too low of levels. Year later I was blessed with twins. Maternal Pku is not easy and you cannot be on Pegpal so you will have to maintain the highest strictest diet for a healthy outcome. If I can do it so can anyone! After the twins , I unplannedly got pregnant. I was not on diet and quickly regained diet control. I’m happy to say she is healthy and does not have the expected outcomes doctors anticipated. She does have a slight learning disability so it does go to show how to gain control of diet prior to pregnancy is a must. My girls are my greatest accomplishment in life and as long as I have Pegpal I am doing great. Try it after you have completed your family. It has a 100% success rate and will be FDA approved next year. I am happy to share more details on this.
    Rachel/ Florida

  3. Registered: Jul 21, 2014

    Posts: 0

    No Location

    Wow congrats on your babies! I dream of the day I am pregnant again! Pegpal seams amazing I’ve heard nothing more then good things. Almost got on it then my insurance stopped :/ so now I’m struggling with that! I’m actually about to write a new blog!!!

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