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August 23, 2010 in Uncategorized

Off to clinic tomorrow... which means I am going to be starting BetterMilk!Hope everyone is doing well :) Katie

9 Reviews of :)

  1. Registered: May 27, 2009

    Posts: 0

    , Florida

    I hope the BetterMilk works for you! I am using PhenylAde and it is mild enough in taste that I am okay with taking it. Five years ago the things they gave me to try (a very brief period of considering a return to the diet) were way too strong in after-taste. Things are getting better for those with PKU. It makes me happy for the children with PKU now. They have much better options now and in the future!

  2. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    I agree! Formula used to make me very sick to my stomach (as many still do!) We are lucky enough to have many different options now. I tried BetterMilk awhile back and enjoyed it. Thanks for the well wishes :)

  3. Registered: Dec 6, 2009

    Posts: 0

    Thessaloniki, INTERNATIONAL

    I’ m not familiar with the products in your country, but i if I understand well you’re trying a new formula. Hope it works well!

  4. Registered: Feb 26, 2007

    Posts: 0

    Chicago, Illinois

    I started Bettermilk about two months ago and LOVE it. I mix it with a tiny bit of juice and it tastes just like a smoothie. I also have a lot more energy & a lot less appetite, both of which are wonderful as I’m always looking for ways to control my weight on this diet. The only downside is that I can eat less protein in food throughout the day.

  5. Registered: Jan 20, 2010

    Posts: 0

    Charlottetown, Prince Edward Island

    Hi Katie, I just received something from our hospital in Canada and if I understood it correctly, I thought it said something about the Bettermilk not having all of the amino acids and you’d still have to do some mixing?? Not sure,…maybe that’s only if you’re a baby, since we do go to a childrens’ hospital. ps…Thanks for writing on here. I often read your posts and other peoples’ and learn so much, or just feel supported in your advice to another parent :) Tasha

  6. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    Thank you all for your feedback with BetterMilk… Fou- Yes it is a formula… Sar- I tried it back in January and loved it. I also heard that it does have some PHE, so less protein might need to happen with my diet. That is why I needed to go to the clinic to hear more and adjust some things…And Tasha- I will be drinking some Camino Pro (my current formula) and adding BetterMilk into my daily intake. I find Camino Pro drinks extremely convenient for when I am running out the door or at work.

    Again – thank you all for your input! :)

    Katie, NY 25

  7. Registered: Sep 12, 2006

    Posts: 0

    Franklin, Wisconsin

    Katie if I remember correctly one packet of Bettermilk has 23 mg of phe.

  8. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    Thanks Breanna…. I had that straightened out yesterday at clinic :)

  9. Registered: Jan 20, 2010

    Posts: 0

    Charlottetown, Prince Edward Island

    Thanks Katie, I learn something new everytime I log in on here!

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