A Different girl is here

A Different girl is here

Avatar of Michela

A Different girl is here

December 18, 2010 in Uncategorized

    Normal   0           false   false   false     EN-US   X-NONE   X-NONE                                        MicrosoftInternetExplorer4                                                                                                                                                                                                                                                                                                                             /* Style Definitions */  table.MsoNormalTable {mso-style-name:"Table Normal"; mso-tstyle-rowband-size:0; mso-tstyle-colband-size:0; mso-style-noshow:yes; mso-style-priority:99; mso-style-qformat:yes; mso-style-parent:""; mso-padding-alt:0in 5.4pt 0in 5.4pt; mso-para-margin-top:0in; mso-para-margin-right:0in; mso-para-margin-bottom:10.0pt; mso-para-margin-left:0in; line-height:115%; mso-pagination:widow-orphan; font-size:11.0pt; font-family:"Calibri","sans-serif"; mso-ascii-font-family:Calibri; mso-ascii-theme-font:minor-latin; mso-fareast-font-family:"Times New Roman"; mso-fareast-theme-font:minor-fareast; mso-hansi-font-family:Calibri; mso-hansi-theme-font:minor-latin; mso-bidi-font-family:"Times New Roman"; mso-bidi-theme-font:minor-bidi;} This is my first blog... A personal story that I hope can inspire others Exercise for PKU people is more than just heart health Any questions please ask.... I want to help out where I can. I am a student in my final year of college and I have recently begun to undertake certain lifestyle changes. These changes are having a major effect on my PKU. I am training for an elite law enforcement team that takes on similar tasks to a Military team, so this teams requirement are rigorous. I have classic PKU and my levels in the past have not been their best and actually inhibited what I wanted to do when I was 16, which was an officer in the Marine Corps. Well people with PKU cannot join the Military, as I was informed. Then I wanted to be a Public Safety Officer which requires someone to be a Fire Fighter, Police Officer, and a Paramedic. This was when I was 18-19 years old, unfortunately I was not in tune with my body and I was uneducated about the particular formulas available at the time. I am a small person by nature, so it was proving difficult to put on muscle mass, which was needed for the required tasks. Recently (around my age of 23-25), I was informed of Phenylade-60, which is a protein boosted formula (60g of protein per 100g of powder plus all the vitamins and nutrients but low in fat and carbs). So I started to watch my diet a little more than I had in the past. During this time I decided to go back to school and finally confronted the fact that I would never be able to do the job I wanted, so I went back to school for Public Administration. So I went through the motions, finished prerequisite classes, visited advisors and such required for college. MY LIFE CHANGED AFTER ONE CLASS I took a class called PA CAREER ORIENT, where I learned that I could be a Federal Agent, a U.S. Marshal, or a Secret Service Agent among other desired careers, so I sparked an interest and voiced my desires to my dietician and she informed me more about the specifics about PKU, stuff I learned before but stored away, and it all hit me like a ton of bricks... I COULD DO THIS. I gathered information about the Marshals and other agencies and I began to physically train. The Benefit I discovered from this. I baffled my dietician. I began training and monitoring, to a T, my diet. I regulated my intake of phe and I knew how much phe I ate each day. When I began the training and regulating I lowered my phe level from a range of 13 - 22mg/dl to 2.3 – 3.2mg/dl…_x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ _x000D_ Hello everyone! My name is Michela and i write from a small city from south Italy. Lecce. most of the people call Lecce as the "Florence of the South so... i suppose is not too bad as city alt I'm 21 years old and I apologize now if I will make some mistakes in English. So, i'm born with Pku and my experience has been really hard. Treatments in Italy are not really good, in fact i've changed 3 or 4 hospitals to treat me. Many doctors told me that i would have the chance to eat as a "normal person" when i was 18 years, when my brain would be totally developed. But that was a lie... only 3 years ago i knew the truth... that Pku is something from which you can not escape. PKU is forever (yes like the diamonds alt) so i had to accept this thing and i had a period of crisis. Now i'm adult (i suppose i am) and i accept everything about me... i can fight for life and i'd like to be a chef also for PKU children in my difficult country, because when i was a child, i had too many difficulties to eat something that was good and also greedy for me. Everything was so... yes, different and sometimes tasteless. actually I'm learning many many recipes to cook for the Christmas dinner and I hope to do a good job. maybe i will post the pix fo the dishes i'll do. So... I stop for now and thank you very much for "listening" me alt Michela x (sorry i'm having so fun with all ther colours of this blog!)

3 Reviews of A Different girl is here

  1. Registered: Jun 27, 2009

    Posts: 0

    , New York

    Hi Michela and welcome! I think it is wonderful that you want to become a chef to help children with PKU (that is what I did after my daughter was diagnosed). I think having a variety of delicious low protein foods makes the diet a little easier to deal with. What are you planning for Christmas dinner? Molly (my daughter) and I are having roasted portabellas with red wine sauce with either braised smashed potatoes & celery root or scalloped potatoes. Biscuits, string bean casserole and roasted brussel sprouts are the side dishes I think I will make. I will also make a beef tenderloin for the meat eaters and serve the same sauce that we are having with our mushrooms. Check out our low protein culinary website — http://www.cookforlove.org — we are a non-for-profit and there are no fees for the site. I would love your feedback!

    Merry Christmas,

  2. Registered: Dec 18, 2010

    Posts: 0


    oh God your Christmas menu is so yummi! Actually i’m not really good to cook, i’m learning but i’m strong and motivated :) anyway, for Christmas dinner i’m going to eat tagliatelle with mushrooms, pumpkin tarts and struffoli… yes, there are many italian typical recipes but with low content of protein! i just saw your website! I LOVE IT! i think i’m gonna write and use most of your recipes. I envy american and english people because you did more progress with PKU recipes and treatments!

  3. Registered: Sep 16, 2011

    Posts: 0

    Fullerton, California

    Hey Michalea, I know what you are talking about when you said you were told that you could stop treatment when you were 18, my mother is French and was raised in the alps in Italy. And we know that doctors in Europe are not well informed and typically children do not do well in European countries because of this. My sister who also has PKU went to France and lived there for about 3 years because my family has dual citizenship. When she went to see a doctor she was given incorrect information about how much medication she should take and suffered greatly because of that.
    I truely hope you either have or can find great doctors that know how to treat PKU. I know my sister and I struggle with depression and anxiety when we are not taking care of ourselves properly. And because she didn’t get enough medication in France she became very anxious and would not even leave the house because of fear. The doctors in France prescribed about 1/3 of what she should have been taking, so the medication was doing very little and was almost completely ineffective.
    I am very blessed to be in the USA and have such great treatment and doctors so if there is anything I can ever do to help please let me know, even if all I can do is tell you how we are treated here in the USA.
    I hope you have a great day.

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