chat room?

chat room?

Avatar of Kristi

chat room?

March 9, 2010 in Uncategorized

Just wondering, does anyone ever use the chat room here on the PKU.com website? I have gone in a few times, just figuring I'd take a shot in the dark as to whether or not anyone happened to be in there. I think it would be a great place for people to come together. i know back when I was a teenager (wow, it seems like a long time ago--about a decade ago!) we had a PKU chat room on AOL. If I remember correctly, anyone PKU was allowed to use it anytime (for example, if a few PKU contacts happened to all be online at the same time and have a group discussion) but there was a schedule. Monday nights were "teen nights" at a certain time. There was another night for parents, etc. Perhaps we could coordinate something like this on here? Maybe coordinate a night for adults, a night for teens, a night for parents, heck-even significant others! And perhaps if the parents wanted to grill adults or something, we could make sure that a teen or adult or two were at some or all of the parent nights. Maybe there already is a set-up like this I am just not aware of...

7 Reviews of chat room?

  1. Registered: Sep 12, 2006

    Posts: 0

    Franklin, Wisconsin

    Hey Kristi, I don’t really use the chat room here on PKU.com, because like you every time I happened to go in there nobody else was around. When I was younger my mom used to set up weekly PKU chats for teens, parents, etc (these might be the chats you are referring to haha). This was back when she was the president of the PKU Organization of Wisconsin. If everyone else is interested in setting up specific chat times I think that would be a great idea.

  2. Registered: Nov 3, 2009

    Posts: 0

    , Massachusetts

    Whoa I was a teenager a deade ago too now that I think of it and I had no idea about this chat room… wish I had!!! I would be interested if some people were going to go in… let me know what you decide.

  3. Registered: Feb 1, 2010

    Posts: 0

    Tucson, Arizona

    I’m looking at my schedule and I can aim to go into the chat room this coming Monday (March 22). I’m wondering if 5pm would work–which is pacific time, so for those on the east coast in the US it’d be 8pm I believe. Due to my work schedule changing every week, I can’t commit to be in the chat room every week, but hope to get to chat with some of you this Monday.

  4. Registered: Sep 20, 2007

    Posts: 0

    Woodbridge, New Jersey

    I can’t come here too often. When I did venture into the chat room, no one was there.

  5. Registered: Feb 1, 2010

    Posts: 0

    Tucson, Arizona

    I ended up getting in there about 7 minutes later than I said I would and stayed for about 45 minutes and was alone the whole time. Maybe we can find a time that works better for everyone and try again sometime…

  6. Registered: Oct 31, 2006

    Posts: 0

    Taylor, Michigan

    somone needs to start a myspace and pku patients r the only ones allowed on it or something like that

  7. Registered: Feb 1, 2010

    Posts: 0

    Tucson, Arizona

    this website kind of is the idea of a “pku only” myspace or facebook. I really like the idea of what we have here! 

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