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April 15, 2010 in Uncategorized
Registered: Feb 1, 2010
Kristi said on April 15, 2010
There are a lot of companies that have low protein food products! I’m not sure how many are available in Europe, but it’s worth a try!
SHS: the website for North America is http://www.shsna.com but what looks like a more international site is http://www.shs-nutrition.com
Cambrooke foods: http://www.cambrookefoods.com
Dietary Specialties: http://www.dietspec.com
PKU Perspectives: http://www.pkuperspectives.com
Applied Nutrition: http://www.medicalfood.com
I’m sure there a a LOT more, but these are the ones I use most frequently and/or am most familiar with. Good luck, Marion!
Yuck. I tried to put each company and it’s address on its own line with spaces in between but formatting changed when I hit “post”. If you have trouble reading it, let me know and maybe an email would be easier to read.
Registered: Jun 27, 2009
, New York
Cook4Love said on April 17, 2010
Taste Connection has a multi-mix (for things like tortillas, cookies, etc.), a bread mix and versa-mix (pancakes, waffles, etc.) as well as wheat starch and some ready made baked goods. In my opinion, if you are looking for a mix, this is the company to go to. Cambrooke Foods is one of our biggest low protein companies in the US. They sell low protein pasta (my opinion is Aproten is the best on the market), rice, a baking mix (very versatile but a little sweet – again just my opinion), wheat starch, low protein cheeses, low protein bread and lots of frozen foods (pizza, ravioli, pizza bites, pierogi, etc.) as well as formula in convenient pouches. Both of these companies are run by parents of children requiring low protein diets and are wonderful people. PKU perspectives carries some products like a low protein egg mix (sweet like a pancake), dry soups, more instant type mixes as well as cheeses and such that they do not manufacture themselves. Ener-g foods, nutricia and dietary specialties also sell low protein products. We supplement a good bit of our low protein foods with trips to the health food stores (Whole Foods is a chain that has a great variety but is expensive). We get vegan cheeses (Daiya, Follow Your Heart, Vegan Rella), ener-g or glutino gluten free pretzels, three sisters cereal, so delicious coconut yogurt & keifer and some ingredients for low protein baking. Brenda
Registered: Dec 6, 2009
Apostolia said on April 17, 2010
I have found this page, http://www.pku-info.org , that has a lot of companies available in Europe, and some are German, too. I have already asked Cambrooke Foods if they do shipments in Europe. They kindly answered that they can send dry food, but the shipment costs and especially the taxes could be really high. What I plan to do is to ask for some friends that go to USA on a regular basis (work, congresses etc. ) to bring me some food. I guess baking mixes that last long enough, cookies etc. I will also go there at the end of the year, so I would be able to get you something special that you would like. Lots of kisses to your children…
Registered: May 1, 2009
Grace said on April 28, 2010
myspecialdiet.com also has some good dry foods, pasta not sure where they will ship to.
Registered: Oct 31, 2006
Bernard [BJ] said on May 1, 2010
i know that their is a comhttp:pany out their online that that is called cambrooks foods i think the websit is http://www.cambrookefoods.com/ i hope that helps some i know that the people that have this company have pku or they have kids with pku i hope that this helps you
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