Avatar of Pete



September 6, 2010 in Uncategorized

Okay, I have been doing relatively well with the diet- even decling to eat when I cannot measure- or accurately estimate- the protein in the food. I have skipped out on steak and ribs. Those were my favorites. Fortunately I love salad, so that is my "treat" during most days. However, I forgot my Phenylade Essentials and MTE powders today. I am working a double at work and am stuck without it... Although, I do have a half of a package of Phenylade Essentials from Friday in my backpack (I always bring it to work). So I am going to have to adapt and LEARN the LESSON! Otherwise, things are going well. I have been explaining PKU to my children lately and being more open about it to acquaintences, not just friends. The restrictions on my diet are not that big of a deal to me. In time my diet may be more restricted. I will deal with that. For now my game is trying to hit the exact protein total goal each day. I mean to the tenth of a gram. That is a challenge. It has been great talking to the others I have met who are dealing with PKU as either a parent, relative or PKUer. In a reference to my essay about being alone in the ocean, I will say it seems like I am not adrift on my own, but now on a cruise ship! Thanks everyone.

3 Reviews of drat!

  1. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    Hey.. I am glad to hear things are becoming easier for you with the diet. You seem to be grabbing more control which of course is going to make you more confident with everything. Keep up the good work. You should be very proud of yourself. It isn’t so easy!


  2. Registered: May 27, 2009

    Posts: 0

    , Florida

    Thanks Katie… I am sure I will have bad days and slip ups, but those things need to be bumps in the road, not the end of a journey. I cannot tell you how different this is than when I tried back in 2000. I understand better now, I am committed to the effort and I have found support- here at PKU.com (friends, yes I consider you a friend already- along with some others on here, who are dealing with the same issues), at home in my family and from my dietician. Even the insurance company is helpful to me. Still, not everyone understands or makes it easy, but those that do are who I focus on.

  3. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    It sure sounds like you’ve figured out what to do for YOU. There is so much more support out there now for PKU which makes it much easier to go back or maintain a PKU diet. Not only are people supporting you, but I am sure there are several people on here that find your stories and blogs helpful and supportive to their own diet. Keep up the positive energy — at the end of the day, that is what will keep you going!

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