Encouraging Kids To Stay on a PKU diet

Encouraging Kids To Stay on a PKU diet

Avatar of Courtney

Encouraging Kids To Stay on a PKU diet

March 3, 2011 in Uncategorized

p { margin-bottom: 0.21cm; }I am a single mom of a 3-year-old girl who was diagnosed with PKU. When my daughter Hailey was younger, it was easier for me to control her diet since I can just feed her with specialized baby milk formula for PKU patients. But now that she has started to eat more solid food, she became a bit picky about what she eats. I have read several research papers about the proper diet for kids who are diagnosed with PKU. I know that she should avoid food that are high in protein, such as meat, eggs, cheese and most dairy and starchy products, but she now enjoys eating from fast food joints. Now, she likes to eat burgers, fries and milkshakes. She also developed a taste for different pastries and cakes that are full of protein. What should I do to control her diet now to prevent her from the ill-effects of PKU? I still have to see a published term paper that offers an advice about how to deal with junkfood if you have PKU. Please help.

3 Reviews of Encouraging Kids To Stay on a PKU diet

  1. Registered: Feb 26, 2007

    Posts: 0

    Chicago, Illinois

    Hi, it all depends on her phe tolerance. If she is hyper phe, she may be able to tolerate some higher phe foods than the rest of us here. But if not, I would suggest not allowing her the high protein foods at all. At that age, the brain is still developing, and it’s very important that her levels stay within the correct range. She will have ill effects if her levels stay too high. I know it may be tough because your child doesn’t want to eat lower protein foods, but in the long run it will be the best thing for her.

  2. Registered: Jun 11, 2010

    Posts: 0

    Sittingbourne, INTERNATIONAL

    I don’t know how to say this without it coming across as being rude. I have to say it though,& don’t mean to be rude or offensive but why is your daughter ALLOWED to eat these foods if she has PKU? I didn’t know what any of these things (burgers, pastries etc) tasted like until I was 13/14 years old when I was told I could come off diet all together. If you don’t introduce these things to her diet in the first place then she will not miss them. I would only recommend not giving her any more of these foods. The worrying thing is that she has got the taste for them now so it is a bit worrying trying to explain to her not to have them. I wouldn’t want you to FRIGHTEN her but I think the only way you would be able to stop her from eating these things is to tell her that they will make her poorly if she carries on eating them. You have not actually said whether or not she has CPKU or another variation, so I may well be overreacting and she may well be allowed these things to eat. I know when I was younger I did live mainly on crisps, low protein biscuits, chips & the few fruit & veggies that I wasn’t so picky about. It was a very unhealthy diet, however it was low in protein and my suppliment gave me the things that I needed that I didn’t get from my diet. There are also so many products out there which are low in protein that you can get for your daughter which you could try and introduce her to?! I hope this has been a bit helpful & I am sorry if I have offended you because that isn’t my intention! x

  3. Registered: Jul 27, 2011

    Posts: 0

    Spokane, West Virginia

    I also read many free essays about it but there where nothing really helpful.

Add Comment Register


Your email address will not be published. Required fields are marked *

Comment *

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>

Processing your request, Please wait....


Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional