even worse update

even worse update

Avatar of khyrsten

even worse update

May 23, 2011 in Uncategorized

Well, this morning I woke up to 4 missed text, 2 missed calls and 2 missed voice mails. My levels are hige again... This time very high I wouldnt call my diettision back to hear how high cause it would only hurt me more to know this baby is getting wors and worse, I also dont wanna be told that this is my fault when i have done everything I have been told to do and also not been givin the right info about this pregnacy. I called my mom and she talked to the Bitch of a diettishion and they want me and Ray to consider termanating this baby. i guess a test That I had done came out really bad. Or thats what my pku doctor said and honestly I have no trust with them right now... They have always lied to scare me into going on my diet. Plus These are the people who told me info 4 months to late and now It seams like this baby doesnt stand a chance. I have a baby appt this friday, To look at the baby and to talk to my doctor that i trust more then my pku ones. I hope they give me an option of staying in the hospital till its born.. I hope that this is just a huge scare, I dont know what im doing wrong... And i Really dont wanna lose this baby...

5 Reviews of even worse update

  1. Registered: May 17, 2011

    Posts: 0

    Mina, South Dakota

    Hang in there. I am sure this has to be so hard on you. Do not blame yourself. God does all things for a reason. Stay possitive. We are just starting to go through all of this with our 23 year old daughter who is pregnant. Was not on diet, started right away and got on formula. She never did take a likeing to meats so her intial level was 20 and has dropped big time already. We pray daily all things go fine and we keep faith and we also understand God does all things for a reason………….it is in his hands. hang in there and thinking about ya

  2. Registered: Jun 11, 2010

    Posts: 0

    Sittingbourne, INTERNATIONAL

    I am so sorry 2hear you are having a terrible time of it :( If you ever want to talk, just give me a message! I’m Becky Pearson on fb if u have that, add me if u like! I really hope the next appointment goes better 4u! I will be thinking of u x x x

  3. Registered: Nov 12, 2009

    Posts: 0

    , Georgia

    I am so sorry that you are having such a hard time. I really think you should try to contact another dietician to see if they can help you. There has to be a way to get your levels down. I know it is different when you are pregnant, but i know that when my son’s levels were really high a few times, he had to drink only his PKU formula for 1 or 2 days to get the levels down. Maybe you could do something like that and then really cut down on the amount of phe you are getting each day. I know this has to be so stressful for you, but hang in there!!

  4. Registered: Oct 12, 2010

    Posts: 0

    belfast, INTERNATIONAL

    gale said on May 28, 2011

    why are the levels so high? can you cook for yourself and your baby only and not have cooking done by others. you know your diet better than anyone. dont risk things by eating the wrong food. its only 9 months . listen to the people that matter. be brave . abigail

  5. Registered: Oct 31, 2006

    Posts: 0

    Taylor, Michigan

    where are u from

Add Comment Register


Your email address will not be published. Required fields are marked *

Comment *

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>

Processing your request, Please wait....


Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional