December 21, 2016 in Living with PKU

Hello! I am new to this, the blog, the posting and the website. I'm 25 years old and I have been living with PKU all my life. I remember being picked on in school because I had to take my formula to lunch. My step mother saying she understand and now only realizing later that there is no way she could. The loneliness I felt because in this problem I was alone. I remember thinking that they say everyone is the same on the inside but I just used to say I'm different on the inside too. The millions of time trying to explain your condition to others and the dreaded question I can never seem to answer on the spot, "what food can you eat?" My sisters didn't get PKU as I did and I have never met anyone with PKU let alone talk to anyone. I would love to though, truly. So, come chat with me, if you feeli like it. Bye!
Add Comment Register


Your email address will not be published. Required fields are marked *

Comment *

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>

Processing your request, Please wait....


Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional