Avatar of Rachel


February 22, 2010 in Uncategorized

Doesn't anyone have any advice for treating acid reflux??? My poor little baby has been diagnosed with this. They have put him on Prevacid and he is doing much better. He was spitting up (more like throwing up) about 5-6 times a day, but now, he is only doing it once or twice. The mornings are the worst! He wakes up dry heaving and crying from pain. I have tried feeding him right away, waiting about an hour, giving him water, giving him medicine at night, giving him medicine in the morning, propping his bed up, holding upright 30 mins after feedings, etc. It seems like no matter what I do, he still spits up every morning. Sometimes, it is right away, but sometimes, it is up to an hour or so after he eats. I know that babies spit up some, but this is really bad, and it worries me b/c his phe levels have been fluctuating and I feel like this has something to do with it. Any advice?!?!?!

3 Reviews of HELP!!!!!

  1. Registered: Sep 4, 2007

    Posts: 0

    Aurora, Nebraska

    I’m so sorry about your baby!! That doesn’t sound like much fun for either of you to deal with. As for the PKU and acid reflux, I don’t really see much correlation between them, but I am not a doctor..yet :-) Hopefully someday!!! I would recommend asking your pediatrician if the acid refux is contributing to the flucuationg levels at all. I would think the only way your baby’s levels would be going up is if he’s not able to keep his food/formula down and get enough nutrients from them. If your baby doesn’t get enough nutrients from food/formula, he will start to break down his body’s own proteins as a source of fuel, releasing phenylalanine into the bloodstream. This is why levels go up when PKUers get sick/have a fever. Sorry I don’t have much advice for you… I suspect your baby’s acid reflux is the worst in the a.m. because his stomach acid is the most concentrated at this point (since he hasn’t ate anything for quite a while!). The problem is, most antacid foods are dairy, so your baby can’t have them (i.e., milk, yogurt, ice cream). I did see online bananas can sometimes act as an antacid. Otherwise, I would ask your physician or nutritionist what would be good for your baby to eat to keep the acid reflux at bay. Hope he gets better soon!!!

  2. Registered: Dec 6, 2009

    Posts: 0

    Thessaloniki, INTERNATIONAL

    I know you must be really worried, but most of the babies have a loose oesophago-gastric sphincter, which becomes better as they get older… Some spitting up once or twice I don;t think s much of a problem, since he doesn;t seem to be in pain. How old is he? My daughter has the same, and additional she has colics during feeding. Have you tried a different teet in the bottle? It shouldn;t have a fast flow. Also burping 2-3 times during a feed helped a lot. You should stick to your pediatrician’s advise, anyway. I don;t know any relation to pku, except the one jenn_harney has pointed out, if he’s not taking enough formula. I’m not an expert, but try not to worry so much…..

  3. Registered: Nov 12, 2009

    Posts: 0

    , Georgia

    Dylan’s dietician changed him from Similac Advance to Similac Sensitive now. We are still mixing this with the Periflex. He seems much better already! I am just upset that his dietician did not tell me this sooner, because she has known about Dylan’s reflux for over a month!

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