Welcome! Join the PKU Community and connect with others like you to gain and give support, encouragement, motivation, and helpful information.
August 13, 2009 in Uncategorized
Registered: Aug 7, 2009
Jordi said on August 14, 2009
I’m not sure of the resources that are available in Austarlia but I do know that in the US we have conferences for adults with PKU and their spouses. Both are able to listen to many seminars on new research, new products, and also sample these new products and recipes.
Registered: Apr 24, 2009
Cornwall, New York
Katie said on August 18, 2009
Hi James… Does your wife have PKU? MissFaria is right.. There are several different conferences held in the US, however there are several resources available online too! This is a great website to find information and recipes… In addition, Patient Power is a great website to gather information about PKU and listen to a variety of podcasts regarding several different issues with PKU… There are also online websites such as Cambrooke Foods that you can order products and find recipes… I will list a few websites below that you may find helpful.. In addition, asking people on here for some advice and/or help regarding PKU is a great idea too!
Best of Luck!
Mail (will not be published) (required)
Your email address will not be published. Required fields are marked *
You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>
<a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>
Enter as much of the recipe information as you can in the fields below. Click Next to move to the next tab.
* Required field
Click the link to add a photo of your recipe. No photo? No problem. Just hit Next.
Please upload an image less than 2 MB in file size and 700px x 700px in dimensions, and in one of the following supported file format extensions - .jpg, .png, .gif and .tiff.
Enter the nutritional information for your recipe below. If you don't have it, no problem. Your recipe will be reviewed by a registered dietitian who will fill in any missing information.
Enter your email address and click to submit your recipe. A registered dietitian may email you with questions.