When we found out my daughter has PKU it was frightening and I would love to say that this feeling has gone away, but it seems that at every age and stage it gets harder and harder to deal with. Her levels have always been below 4.0 (except once when she was a newborn it was 8.6), but I am making myself crazy with worrying about PKU all the time. The newest problem is getting her to actually meet her phe goal of 380. I know she is at that age where children become picky eaters and/or want to stop eating all together, but it is very hard to deal with this when she has PKU. Even a few months ago she was eating so much food that I was making a lot of low protein foods to fill her up, but now she eats so little I don't know how she is staying alive! The things she wants to eat are very low in phe (apples, carrots, etc), but now she won't eat anything to help meet her goal. He dietician has suggested putting a couple of ounces of real milk in her formula to boost her, but she refuses the formula with the milk in it. She also suggested getting her to eat things that are higher in protein such as oatmeal or a slice of real bread, but my daughter will have nothing to do with these either! I just don't know what to do. I figure most people are having trouble not going past their phe limit, but has anyone had the problem of getting their kids to reach their phe goal?