My daughter was born last Monday, and they did the test on her either the 2nd or 3rd day in the hospital. Well this past Friday I got a phone call from Hershey Medical Center that her PKU level came back and the doctor wants to see her right away he wants to retest her because they believe she has PKU and if she does we need to start a diet asap because it can cause mental retardation. Well of course I freaked and we went right away. He told me that her level was 6.5 and the safe zone is between 2-6, he thinks that she deffiantly does have it but wants to be sure by retesting her. He sent us home with this special formula bbut told us not to start it yet till he gets the 2nd test results. I don't know what to think, I have never heard of this before and I don't know a soul who has it. She is a normal healthy baby other wise, with beautiful black hair and very dark blue eyes, I also have a 2 year old daughter and she is perfectly fine. Today I spoke with her pediatrician and she told me that false postives have happened, and Zoey was just over the border, is there any hope that this may be a mistake, or probably not??? I am so worried I cannot eat or sleep. This is all I can think about. I have been doing all the research that I can about this and nothing is making me feel any better, another concern of mine is how will we be able to afford the special foods that are out there for this? We can barley afford to put regular food on the table. Is there help for when she is able to eat solid foods? I am trying to enjoy my 6 weeks off with both of my children and to bond with my baby but that seems impossible now.