HI from Ireland

HI from Ireland

Avatar of lesley

HI from Ireland

July 10, 2009 in Uncategorized

Hi my name is Lesley and im a 31 yr old pku from the republic of ireland. Im just wondering if there are any ppl who want to chat with me at some time or is this site used mostly by american pku,s for networking in their town, state etc. i understand with the size of the United States this is an invaluable tool and of course the time difference between the states and here would be a problem for live chat but i hope is not the case as are not that many pku's of my age in ireland and it would be really nice to have an adult conversation about it with someone who understands and who i dont have to teach about pku before i talk to them Cead Mile Failte

5 Reviews of HI from Ireland

  1. Registered: May 2, 2009

    Posts: 0

    Topeka, Kansas

    Hi Lesley.. can always message me would be glad to chat that way if the other isnt convenient. i understand how that is…

  2. Registered: Jul 12, 2009

    Posts: 0

    , Michigan

    hi i do not have pku but my little girl has it so i would love to talk to you about it how long is the time difference? and when do you talk on this site

  3. Registered: Nov 16, 2007

    Posts: 0


    Hi there Lesley. I’m from the republic of ireland and am 37 years old and would be willing to chat with you. Like you I understand that most of the people on this site are from the usa, so it would be nice to meet some irish, scottish or english ppl.

  4. Registered: Jun 9, 2009

    Posts: 0

    Sun City, Arizona

    Hi Lesley,
    My name is Beverly. I found out I had PKD when I was 31 years old. I am now 56. My 2nd daughter Angela had PKD and her second son has PKD. So far her other two children do not. I now live in Phoenix , Arizona, for about 2 1/2 yrs. Before that I lived in California my whole life. I am very involved here in Arizona with the PKD Chapter that I helped set up, also we have a Walk for PKD every year in September. I am the volunteer coordinator for this. My mom died at age 69 when I was in my 30’s . Would love to send you website for the PKU foundation located in Kansas City, MO, United States. It would give you so much in site to what is being developed. So far, I do not have any kidney complications. Diet is very important to me.

  5. Registered: Sep 18, 2006

    Posts: 0


    Hi Everyone,

    thank you to anyone who posted they would talk to me – i appreciate it very much but it seems its been a year since i logged in !! that just flew and im very sorry that it seemed like i ignored you good ppl

    hopefully i will be on here a bit more often than once a yr but no guarantees :-)

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