I am so thankful!

I am so thankful!

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I am so thankful!

November 7, 2009 in Uncategorized

I had the amazing opportunity to attend a meeting yesterday with many medical professionals involved with metabolic disorders. At this conference the keynote speaker discussed the history of PKU and newborn screening. As I sat in the audience and heard about the leaps and bounds that have come from a few select very passionate people, I was moved. To think that people who have come before us and worked so passionately for us to all be screened at birth is humbling. We have come a long way and still have a long way to go. But for everyone who has come before us I realized just how blessed we are that we and those that come after us were and will be identified and treated. And through this treatment, our lives have been completely altered for the better. For those of us that were not caught early enough, I am so thankful to have meet some who were taken off diet too early and have since returned to diet. What a struggle that is, I respect these people so much. To hear that their lives have been changed for the better with dietary treatment, shows how far we have come! I am not sure if I am verbalizing myself correctly, but I am just so happy even in my own lifetime for how far we have come and everything that we are blessed with. For how frustrating and annoying the foods and formulas can get, it is all worth it to know that we could all be much worse off. As for me, I have worked over the past few years of my life to become a Registered Dietitian. Being in that audience yesterday showed me that I want to give back to this community that has embraced me and bettered my life. I am just so thankful for the realization of the enormus blessings that I have recieved. I am thankful for others with PKU to know that we have others to support and there to support us. We are not alone, and we can do it! : )

3 Reviews of I am so thankful!

  1. Registered: Oct 1, 2009

    Posts: 0

    , INTERNATIONAL

    Amen to that!! We are so very lucky. It could have been a lot different for us.

  2. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    Well said and pointed out :) Wish I had the opportunity to listen to it too!!

  3. Registered: Nov 1, 2008

    Posts: 0

    Wyoming, Michigan

    Absolutely, our lives could be so much worse. I appreciate my diet so very much. Because of it, I can now lead a normal life. I just remind myself that it is only food. I try to keep it all in perspective. I believe that the Lord only gives us what we can handle, and obviously He knows that I can handle having PKU. No, it is not easy, but it is so worth the effort. Especially when I see how perfectly normal and intelligent my two awesome kids are. Their smiling faces keep me going.

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