Is anyone out there

Is anyone out there

Avatar of lisa

Is anyone out there


March 20, 2011 in Uncategorized

Dear fellow PKU-ers, is there anyone from the Buffalo-Rochester area? I live in buffalo(williamsville area). I want to connect with Mothers of PKU children and especially PKU young adults and adults 30 yrs.& older. I'm a 49 yr.old woman trying to reconnect with the PKU community.I'm very uninformed about anything new related to diet, or ang that hnytas been put on the market within the last 10 yrs.I'm  disco1queen.I will friend you if you reply.  Very Sincerely, Disco1queen

1 Review of Is anyone out there

  1. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    Hello. Mn name is Katie and I am a 26 year old with PKU. I live in NY, but am only one hour north of NYC. Do you go to clinic at all? The dietitian from Rochester is great and would be a great help in trying to network yourself with other PKUers and informing you about diet. I have her e-mail if you would like. Just send me a message!


Add Comment Register


Your email address will not be published. Required fields are marked *

Comment *

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>

Processing your request, Please wait....


Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional