Just Another Update...

Just Another Update…

Avatar of Stacy

Just Another Update…

November 7, 2009 in Uncategorized

Well we've had a crazy few weeks with Chris' PKU. Nothing terrible just some changes we had to make. His appointment with the specialist is still set for February 23rd, they haven't been able to get him an earlier appointment. The dietician told Chris to make sure to go back on a regular diet until he gets his formula and sent him some samples to try. He also got the Kuvan in the mail and was told he has to wait until he sees the specialist before starting on it. So now we're just waiting to get his first full month's supply of PKU 3 formula. Just a quick update for you all. I'll let you know more as we find out. :)

3 Reviews of Just Another Update…

  1. Registered: Sep 12, 2006

    Posts: 0

    Franklin, Wisconsin

    I am so excited for Chris! Good luck to the both of you with Chris’ appointment and with continuing the process of getting him back on diet!

  2. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    Yay! Keep us updated once he goes to clinic and starts Kuvan!

  3. Registered: Nov 3, 2009

    Posts: 0

    , Massachusetts

    That’s great! I know that things are going to work out : ) It is quite the transition but definitely worth it in the end! Can’t wait to see how he ends up doing!

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