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February 18, 2011 in Uncategorized

Hello, I was wondering if anyone here has tried or is currently taking KUVAN? I have just started a KUVAN study today and I am awaiting results. Is anyone else participating in this study? For anyone on KUVAN please share how it helps or does not help you.

7 Reviews of kuvan

  1. Registered: Sep 17, 2010

    Posts: 0

    colorado springs, Colorado

    hi i am currently in the kuvan trial in denver co and i have been in it sence 12 _x0008_ no resluts on levels yet wont have any till next visit in march. 

  2. Registered: Jul 25, 2007

    Posts: 0

    land o lakes, Florida

    Thats good to hear that someone else is participating. I am on my 4th day now, however have no idea which pills I am taking, but have not noticed any changes so far

  3. Registered: Feb 17, 2011

    Posts: 0

    covington, Georgia

    my fiancee is on it. she said that even without the diet it helps. However it does not fix pku…you will still need to watch your levels.

  4. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    Hi! I have been on Kuvan for over 3 years now. I was in the study before Kuvan was approved by FDA. Kuvan helps keep my levels low and stable. It is very important that when on Kuvan, you work with your doctor to make sure you are still eating the right foods for the drug. People react all different to Kuvan, and there are those that don’t respond at all. If you need any other info, feel free to e-mail me at katiemag16@aol.com..

    Katie, 26

  5. Registered: Jul 25, 2007

    Posts: 0

    land o lakes, Florida

    Thank you very much Katie. I am not counting any phes, and still kind of eating whatever. Nothing too high though. Message me anytime

  6. Registered: Feb 28, 2011

    Posts: 0

    Minneapolis, Minnesota

    Hi, I tried Kuvan. It didn’t work for me. I have classic PKU, so I lack the emzyme action which makes Kuvan effective. I hope it works for u. Cheers, Morgan

  7. Registered: Jul 25, 2007

    Posts: 0

    land o lakes, Florida


    Sorry to hear that. I also have classic PKU, but im hoping that KUVAN will work for me

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