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June 27, 2011 in Uncategorized

Well it’s been a while since I have posted anything on here but it’s about time for an up date. First I am still on diet most days I do very well but every once in a while I slip up usually nothing too bad but still I need to fix that. I recently got married to my boyfriend of 10 years Richie King so that is amazing we are so happy. With that we are looking to start a family….which I am excited and scared about. Happy because I would love nothing more then to give my husband a son but scared-terrified since I have PKU how will I be at controlling my diet, will I be able to keep my levels low enough, will my baby have PKU (I pray that they won’t), will my baby be healthy. All these unknown things make me nervous I do not like having control and with this I will have no control except on my diet. Are there any women out there who have PKU and had a child? If yes what was it like? Were you able to keep your levels down, how did you do that? I am so scared that I will mess up and end up hurting my child. What if I am the reason our child has health problems this has been my BIGGEST fear growing up with PKU. When you are young you don’t think of these things but now it seems all I can think about. I am not sure if this is a normal feeling but it would be nice to hear from some women who have already been threw this and give me some advice on what to do before getting pregnant and during pregnancy. I have already talked to my Dr. and he knows we are planning this and said it shouldn’t be a problem which was good to hear but, it would still be nice to hear from someone who went threw this. Please if you have any advice for me send me a message or leave a comment.

5 Reviews of Life….

  1. Registered: Feb 26, 2007

    Posts: 0

    Chicago, Illinois

    Hey Steph,
    Congrats on your marriage! I got married on April 30 of this year! I have the exact same fears & issues that you do. I know that’s no help but I can totally relate.

  2. Registered: Dec 2, 2009

    Posts: 0

    Phelan, California

    Thanks Sarah and congrats to you too! Yes it helps I am glad I am not the only one who feels like this. :)

  3. Registered: Dec 2, 2010

    Posts: 0

    palm springs, Florida

    Everyone have fears when decided to start family even without PKU. All of this questions that you are asking now, all mothers asked before even no PKUers, so work hard with your diet before and during your pregnancy and you’ll be reward with a precious, healthy baby with/without PKU (if she/he has PKU…gonna be like you, a happy healthy person who will be married, sucesfull and in special HAPPY because a lover mother will be on her/his side.
    Good look and best regards

  4. Registered: Oct 31, 2006

    Posts: 0

    Taylor, Michigan

    i dont know all the answers but from what my mom told me because i have the same concerns about having kids because i was in a relationship and my gf wanted to do things and i was afraid about it because i did not need a baby with pku at the age of 18 so but anyway to get to the point is that i know that there is a way of testing for the gene you should call you metabolic clinic about it i hope that helps you if you would like more information you can contact me at

  5. Registered: Dec 2, 2009

    Posts: 0

    Phelan, California

    Thanks guys this really helps I am starting to not freak out so much. :) Wish me luck my diet has been going great just need to get back on formula then I am ready.

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