My name is David I am a 52 year old man that has has PKU. My experience with PKU includes my brother whom is 54 and now my grand daughter whom is3 weeks. My brother was diagnoised with PKU after experiencing etc. The doctors were stumped for a long time. At the time I was two years old the doctors called my mother and informed them that my brother had PKU. They asked my mother if she had any other children. She responded yes she had me and was pregnant and about to deliver my sister. The doctors informed her that they would test my sister and not to worry about me since I was not exhiiting any of the symptoms of the disease. The tests on my sister came back negative, thatk God but the tests on me were posetive, my mom freaked. The doctors couldn't figure out how I escaped the effects of PKU. I was put on the PKU diet at age 2 but only left on it until the age of 5. I did all the PKU diagnostics that were available at the time and I would make my yearly vists and I never understood the scope of the disease. My brother was severly effected but I never met him until I was 16. Today I am still not on the PKU die t altnough I understand that there has been a search conducted to locate the people of my generation and get them back on the diet.