MPKU - Ahh so that's it!

MPKU – Ahh so that's it!

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MPKU – Ahh so that's it!

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November 2, 2009 in Uncategorized

Well we figured out what made my levels go up... capsicum and strawberries!!! Now I knew that other vegies are quite high like potatoes, asparagus, avocado, mushrooms, corn etc... but capsicum and strawberries were on my 'negligible phe content' list. But apparently if you eat them in large quantities they make the phe go up! Of course I only found this out the day I did another level after I had done it and sent it. And the night before I did the level I had a big bowl of strawberries. So surprise surprise my next level was 352. Oh well at least I know now and can sort that out. Hopefully it will motivate me a bit more because it's November now, which was my target conception month. Hopefully I can get them down enough fast enough to keep that. Otherwise it might be December or Jan (ugh and Christmas in the middle of all that!)

10 Reviews of MPKU – Ahh so that's it!

  1. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    Wow, I never knew that they were high in PHE either. Thank you for sharing. Keep up your good work! Before you know it, you will be pregnant again : ) Good luck!

  2. Registered: Jul 1, 2009

    Posts: 0

    , INTERNATIONAL

    Lol, not again. It would be the first time. But thanks anyway :D

  3. Registered: Jan 15, 2007

    Posts: 0

    Sydney, INTERNATIONAL

    Wow i can’t believe that Strawberries and Capsicum made so much difference. How much were you eating???
    Your blog has been so interesting. I thought i would let you know where i was up to.
    My latest level is 134. I have actually been keeping a food diary which has helped.
    At the moment i am averaging about 4g protein per day. + 5 PKU express/cooler. Some days i have had to make up protein in the evening by having a couple of sqares of lindt chocolate (1g Pro)
    I checked my weight after reading your last blog and luckily it has been maintained.
    I mostly eat free foods and haven’t counted Strawberries or any veg on the negligible list.
    My levels have been low enough but so far no luck.
    Sorry to take over your blog. Thought you might be interested
    Good luck
    Katie

  4. Registered: Jul 1, 2009

    Posts: 0

    , INTERNATIONAL

    Yes well I made a stir fry with about 2 capsicums in it but the stir fry was equivalent to 4 portions. So each was half a capsicum. But apparently I should have put half a capsicum in the whole lot! I had about 150g strawberries. So I’m guessing just a small amount like 5 or so is better. Didn’t think it would be that bad!!

    Wow! how do you do 4g and have any left over?? That’s amazing. Although I have found that too with 7g because you’re trying to eat so low you actually do end up eating really low and having to make it up. But 4g seems like it would be harder to do that!

  5. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    Bannie & KT… just curious – did either of you try Kuvan or hear of it?

  6. Registered: Jul 1, 2009

    Posts: 0

    , INTERNATIONAL

    Heard of it. Haven’t tried it. I’m Australian and I’ll probably be 40 before it comes here! :P

  7. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    You should ask your clinic about it Bannie… Maybe there is a way you can get it through your clinic.

  8. Registered: Nov 3, 2009

    Posts: 0

    , Massachusetts

    there is 0 protien in Mushrooms and Strawberries…

  9. Registered: Oct 1, 2009

    Posts: 0

    , INTERNATIONAL

    Hi Bannie, when I was pregnant and pre pregnancy I used to weigh everything that I ate out and work out the grams of protein or units. Mushrooms do have protein and so do strawberries it may be only a little bit but when you are trying to get your levels down so low it can make a difference. Do you keep a food diary? Which country do you live? Do you count units of grams of protein?

  10. Registered: Jul 1, 2009

    Posts: 0

    , INTERNATIONAL

    Hi Kellie.Yes, there is a bit of protein in mushrooms and surprisingly a little bit in strawberries. As you said, enough to make a difference when you’re trying to do maternal PKU. My dietitian recently sent me through a list. Half a cup of strawberries is 0.3g of protein and 50g mushroom is 0.5g of protein (yes I do work in grams btw, lol). I used to count in units but we have moved to grams in recent years. I find it a lot easier!

    I sort of keep a food diary and sort of don’t. I really should try and do it properly though. Now that I know exact amounts for fruit and veggies it will be much easier! :)

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