MPKU - Have officially run out!

MPKU – Have officially run out!

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MPKU – Have officially run out!

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January 5, 2010 in Uncategorized

Okay, so I had no formula supply but I was able to get some. I found some Vitaflo sachet samples and used them for a couple of days. Then I got some supplies from the hospital which were a mixture of Add Ins, Phlexy-10 tablets, Lophlex and Vitaflo coolers. I spent the last 2 days having 10 and then 20 grams less than what I am supposed to in order to stretch them out. And now I have run out completely. The pharmacy still has not recieved from the supplier, which is based in the Eastern States. The dietitian said last week there were no extra supplies in my state. It seems there still aren't. By the time I was able to ring the pharmacy today, the supplier was closed over east. The pharmacy is ringing them first thing tomorrow and then ringing me to let me know what's going on. In the meantime I have sent an email to a PKU lady I know who lives nearby to beg some off her, but she hasn't responded yet and I'm not sure of her phone number. I might have it somewhere so I'll probably find it and give her a call. Sigh. All this has to happen just when I'm about to start TTC.

4 Reviews of MPKU – Have officially run out!

  1. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    So sorry Bannie! Hang in there for the time being… Maybe I should fly over to see you :) I will share

  2. Registered: Jul 1, 2009

    Posts: 0

    , INTERNATIONAL

    Thanks Katie :) I appreciate your willingness. If only the distance… but I did speak to someone in my city on Facebook last night who offered some. Except she disappeared before we could organise it. Gonna see if I can find her on there today.

  3. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    Oh good… I am sure you will speak to her again soon! Hang in there girl :)

  4. Registered: Jul 1, 2009

    Posts: 0

    , INTERNATIONAL

    Got it! She called me last night and I went over and got some. We live very close so it’s easy. I’m going to change to her pharmacy. My pharmacy didn’t do anything wrong, but I think it’ll be easier because she’s been using hers for years, so they’ll know all about it.

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